losangelesnewstoday.com March 22, 2018

Terminally-ill United Kingdom baby to spend final days in hospice

28 July 2017, 12:19 | Violet Powell

Charlie Gard's parents given until noon tomorrow to agree arrangements for his death

Charlie Gard's parents

But the case was back in court on Tuesday as Great Ormond Street and Charlie's parents again found themselves at odds, this time over where he should spend his final hours.

The parents had made clear that if they could not take Charlie home, they would prefer him to die in a hospice rather than in the hospital, where he has spent most of his life.

The case that captured worldwide attention returned to court again on Wednesday after Great Ormond Street Hospital (GOSH) and Charlie's parents could not to agree on a plan for the rest of Charlie's life.

An alternative arrangement appears unlikely, given the total breakdown in relations between the parents and the hospital.

"What if it was your child", Connie Yates shouted at the hearing before storming out in tears.

Doctors at Great Ormond Street Hospital (GOSH) said it would not be practical for Charlie, who is severely brain damaged, unable to breathe without machines and can not move his arms and legs as a result of his mitochondrial DNA depletion syndrome, to receive treatment at their home and argued it is not in his best interest for him to be kept alive at a hospice for a long period of time.

Connie Yates, right, mother of critically ill baby Charlie Gard arrives with her legal team at the Royal Courts of Justice in London, Wednesday, July 26, 2017. "We need some peaceful time with our baby boy".

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Mahoney posted on Facebook that Charlie's parents "have until 12 PM tomorrow to meet the requirements of Great Ormond Street hospital in terms of bringing Charlie home for his final hours".

He expressed confidence that a transfer to a hospice could take place while meeting Charlie's nursing requirements.

The judge said no one could begin to understand the parents' agony but they now had to "face reality" that it is in their son's best interests to die.

"He's our own flesh and blood and we don't even have a say in his life whatsoever", Yates said.

Charlie suffers from an extremely rare degenerative condition called mitochondrial DNA depletion syndrome, which has caused brain damage and left him unable to move his limbs.

He requires invasive ventilation to breathe and can not see, hear or swallow.

He said: "We know (Charlie) is not in pain and suffering, so to set the bar so high that he needs this specialist with him 24/7 is setting a massive hurdle that is totally unnecessary". He was so sick, so disabled that continuing to try and "fix" him seemed to the doctors and nurses and courts who looked at his situation to be wrong to do so.

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